05-03-2009, 06:55 PM
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Mini Train Conductor
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Join Date: Jun 2007
Location: Ohio, USA
Posts: 522
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Positive Energy, Anything, Anything...
This is going to sound SO ineloquent and jumbled and ahhhh, because I'm just SO upset right now.
My cousin Schuyler is one of my best friends. At 15 years old, she has been through more hell than I know 99% of people experience in a lifetime. Several years ago, she was diagnosed with pseudo tumor cerebri (or intracranial hypertension). Basically it's increased pressure/swelling on the brain and a buildup of spinal fluid. She's been in and out of the hospital for years, but now, you could say she pretty much lives there.
For two months straight (with the exception of two or three nights), she's been there. I can't count how many surgeries she has undergone. First they put a shunt in her back, then they had to put one in her head, and they've had to go back in OVER AND OVER AND OVER AND OVER because the operations failed. Even the trained professionals are puzzled. She got sent home on Easter, only to be back in for another surgery when spinal fluid started leaking out of the incision in her back. She's been in the hospital since then, had her head partially shaved, and the shunt put in her head, and was sent home Friday, only to be back in again now because the fluid is leaking once again.
I just don't know what to do or say anymore. She is SO strong and has handled this with so much grace and bravery, and yet, it becomes too much for her sometimes. When I went in to see her last week, she was literally bawling from the pain. She RARELY cries, so I just knew it wasn't stabbing pain. I mean she was seriously in AGONY. And I shouldn't be the one complaining, but I just NEED to know that she's going to be okay. I NEED this operation to work. If she can't get better for herself, then I'm going to be selfish and ask that she get better for me, for our family, because I need her. WE need her. I can't lose her. WE can't lose her.
Seriously, any positive energy sent her way would be so appreciated. Or just a pat on the back or some hugs. If you're a praying type of person, please pray for her. Whatever it takes. I just need her to get better.
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The only blind person at Christmastime is he who has not Christmas in his heart. - Helen Keller
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Last edited by SarahE; 05-03-2009 at 06:58 PM.
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05-03-2009, 07:53 PM
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Mistletoe Hanger
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Join Date: Oct 2006
Location: Seattle, Washington
Posts: 3,380
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Special prayers going out for her right away SarahE. Sounds like she has
indeed been through a lifetime of suffering and pain at such a young age.
It is indeed a great comfort I'm sure for her to have you beside her along
the way. I'll be praying for her and for your continued strength as well. 
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05-03-2009, 08:44 PM
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Mini Train Conductor
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Join Date: Jun 2007
Location: Ohio, USA
Posts: 522
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Thanks so much. I'm just so scared to answer the phone anymore in fear of the news I'm going to hear.
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The only blind person at Christmastime is he who has not Christmas in his heart. - Helen Keller
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05-03-2009, 09:47 PM
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Super Moderator
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Join Date: Feb 2007
Location: Naples, Florida
Posts: 8,104
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Sarah E...Oh my such a burden to bear. I am a praying person and am sending prayers up for her right now. Thank you for bringing this to our attention. God bless all the way..
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05-04-2009, 06:26 AM
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Elf Outfit Stylist
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Join Date: Dec 2006
Location: Nashville TN
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Just finished a prolonged prayer for your cousin. How do you pronounce her name, by the way? Shy-ler?
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05-04-2009, 06:34 AM
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Christmas Music DJ
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Join Date: Jul 2007
Location: London, UK
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Adding her to my prayers as well. Please don't think of it as a selfish request. It's a genuine request from one member of the family who loves another member.
((((((((((((((((HUGS)))))))))))))))))
((((((((((((((((HUGS)))))))))))))))))
((((((((((((((((HUGS)))))))))))))))))
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05-04-2009, 06:39 AM
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Home Decorator of the Season
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Location: The Netherlands; The Hague
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Sarah she will be in my prayers! You all have done the same for me last year with my surgery for my cancer and i am so glad you all did! Thank you so much!
And for you and you family a big 
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A smile a day keeps the doctor away
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!
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05-04-2009, 11:36 PM
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Mini Train Conductor
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Join Date: Jun 2007
Location: Ohio, USA
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Originally Posted by number4son
Just finished a prolonged prayer for your cousin. How do you pronounce her name, by the way? Shy-ler?
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It's Sky-ler.
Thanks for all the thoughts and prayers. She got out of surgery at 1am yesterday and is going to be on a prolonged bedrest so hopefully this doesn't happen again.
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The only blind person at Christmastime is he who has not Christmas in his heart. - Helen Keller
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05-05-2009, 12:32 PM
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Administrator
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Location: Bloemendaal, Netherlands
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SarahE, I'll be thinking and praying for your dear friend...hope things improve for her very soon. Poor thing...
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A Very Merry Christmas to you and yours!
Kind Regards from ElfSpirit!
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05-06-2009, 01:11 AM
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Home Decorator of the Season
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Join Date: Sep 2008
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Keep us up dated on how she is doing!
I wish you and your family all the strenght you need!
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A smile a day keeps the doctor away
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05-06-2009, 04:50 AM
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Home Decorator of the Season
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Join Date: Jul 2007
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sending special prayers your way
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05-06-2009, 09:23 PM
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Santa's Good List 2nd Checker
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Location: Queensland, Australia
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My prayers are with your cousin Sarah, just being there for her is probably helping her get through this too, wishing all things go well with her next operaton and prayers for you too....
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I'M DREAMING OF A WHITE CHRISTMAS:
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05-12-2009, 10:59 PM
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Mini Train Conductor
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Join Date: Jun 2007
Location: Ohio, USA
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She has since had another operation due to pressure on the ventricles in her brain. I think she was most upset about the fact that they had to completely shave off her hair in the back.
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The only blind person at Christmastime is he who has not Christmas in his heart. - Helen Keller
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05-13-2009, 09:21 AM
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Moderator
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SarahE,
Mental hugs and lots of prayers sent your way for you and and your cousin and family members.
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How can you cram Christmas into just two weeks?
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05-13-2009, 04:57 PM
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Christmas Talk Owner
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Join Date: Sep 2006
Location: virginia
Posts: 18,578
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Schuyler is in my prayers and has been added to our prayer group. She is so young to have to deal with so much pain. I will keep her in our prayers. You being there has to be a great comfort for her. Let her know we are praying for her. I will keep you in my prayers to keep you strong for her.
I am so sorry to hear all the pain she is in. God bless her and your family.
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"Don't be sad that it's over - be glad that it happened."
Alas! How dreary would be the world if there was no Santa Claus!
There would be no childlike faith then, no poetry, no romance
to make tolerable this existence. - Francis P. Church
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05-13-2009, 05:27 PM
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Mini Train Conductor
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Join Date: Mar 2009
Location: North Carolina
Posts: 505
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SarahE I don't know how I missed this post until today but I will be praying and all of you will be on my churches prayer list.
Teresa
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05-13-2009, 05:29 PM
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Mini Train Conductor
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Join Date: Mar 2009
Location: North Carolina
Posts: 505
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SarahE I forgot to ask but is there an address where we could send cards to her to let her know we are praying for her?
Teresa
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05-17-2009, 09:08 AM
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Christmas Talk Owner
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Join Date: Sep 2006
Location: virginia
Posts: 18,578
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That would be great theresa. I think we could send them to sarah and she could take them to her. Sarah if it is okay PM me your address and I will PM whomever wants to send a card to her.
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"Don't be sad that it's over - be glad that it happened."
Alas! How dreary would be the world if there was no Santa Claus!
There would be no childlike faith then, no poetry, no romance
to make tolerable this existence. - Francis P. Church
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05-18-2009, 06:40 PM
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Mini Train Conductor
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Join Date: Jun 2007
Location: Ohio, USA
Posts: 522
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Schuyler is having surgery again tomorrow. The shunt is being adjusted in her head. Her entire head will have to be shaved now. You can imagine how devastating this is to a 15 year old girl...
That would be lovely, guys. LIU, I will pm you my address...
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The only blind person at Christmastime is he who has not Christmas in his heart. - Helen Keller
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05-18-2009, 07:58 PM
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Super Moderator
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Join Date: Feb 2007
Location: Naples, Florida
Posts: 8,104
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Sarah E...my prayers are continuing for your wonderful young cousin. When your addy is published I will send her a card through you. It is all so meager for what she is suffering right now but my heart goes out to this dear young teen. I am praying for a complete healing for her.
Never give up and always stay positive in spite of it all.
God bless..
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